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About Cystic Fibrosis

The Canadian Facts & Figures on Cystic Fibrosis

Did you know…

  • One person dies from cystic fibrosis in Canada each week
  • Of the Canadians with cystic fibrosis who died in 2011, half were under 34 years old
  • One in every 3,600 children born in Canada has cystic fibrosis
  • 50% of Canadians with cystic fibrosis are diagnosed by six months of age, and 73% are diagnosed by the age of two
  • Approximately 4,000 individuals with cystic fibrosis attend one of the 42 specialized cystic fibrosis clinics across Canada
  • Cumulatively, Canadians with cystic fibrosis spent over 25,000 days in hospital and attended CF clinics more than 15,000 times in 2011
  • One in 25 Canadians carries a defective version of the gene responsible for cystic fibrosis
  • More than 1,900 mutations in the CFTR gene have been identified, however nearly 91.5% of individuals with CF in Canada carry at least one copy of the most common CF-causing mutation, ΔF508
  • In the 1960’s, most children with cystic fibrosis did not live long enough to attend kindergarten
  • Today, half of all Canadians with cystic fibrosis are expected to live into their 40s and beyond
  • Nearly 60% of all individuals with cystic fibrosis in Canada are adults
  • 86% of individuals with cystic fibrosis must take pancreatic enzymes to digest food and absorb nutrients
  • 30% of female adults with cystic fibrosis and 17% of male adults with CF are classified as underweight
  • 44 CF patients received transplants in 2011, more than double compared to a decade ago
  • Nearly half of all patients with cystic fibrosis are infected with harmful bacteria such as Staphylococcus aureus and/or Pseudomonas aeruginosa in their lungs
  • 16% of all Canadians with cystic fibrosis have CF-related diabetes (CFRD), and 38% of CF patients 35 years of age and older have CFRD
     

For more statistics, download the Canadian Cystic Fibrosis Registry 2012 Annual Report. 

 


Reviewed/updated: 2013-05-07


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