Like most three-year-old twins, Jaxon and Jayce Galick enjoy swimming, playing with their “mighty machine” toy bulldozers and watching their favourite movie Wall-E. Unlike most twins, Jaxon and Jayce spend hours a day doing physiotherapy, were diagnosed with cystic fibrosis (CF) within the second day of their lives, and are a part of an awareness campaign across Canada as two of the faces of CF.
When you look at someone with cystic fibrosis, you don’t see the disease,” said Angela Galick, the boys’ mother. “We say it’s a silent disease because everything that they fight against is on the inside and isn’t visible. Our family got involved with Cystic Fibrosis Canada’s campaign because we want to raise awareness. I want people to know their strength, their courage, their bravery, and respect the fight. We decided from day one that we would never take a backseat to this disease. If we were going to face it, we were going to face it head on, and we were going to fight back.”
Though they themselves felt in the dark, devastated and terrified as parents upon first hearing their sons’ diagnosis, the Galicks wanted to ensure they helped to increase awareness of the disease and of the people who so bravely fight back against it.
By being open about the twins’ diagnosis, Galick adds that they have met and touched a lot of lives and had theirs touched as well, and that being in the ad has had a very positive impact on their family. They have been contacted by friends and family across Canada who have seen the ads on bus stops, in malls, etc. and described the ads as very impactful.
“We’re just so grateful to be a part of a campaign such as this,” said Galick.
The boys are aware of their ad and have even gone to a mall in London, Ontario to see their ad in person and to stand in front of it, much like their fight against CF. Though they know it is them in the ad, Galick adds that she doesn’t believe at this age, they really understand what the ad is about.
“For the twins’ future, I want them to know the disease is what they have, but it’s not who they are; cystic fibrosis does not define them,” said Galick. “I want my children to live. I want my children to experience life as any other child would. I hope they always have goals and aspirations and do everything they can in life to achieve those. I hope they continue to reach out and touch people and use their experience to connect with others, create awareness and live a full life.”