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Shannon Price

Meet Shannon Price

My name is Shannon Price. I’m incredibly passionate about my wonderful family, my dogs Apple and Sammy, cooking, movies, music, reading, and being outdoors. While…

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from the desk of the CEO

Spring update from the desk of the CEO

As temperatures slowly warm and the days get a little longer, we at Cystic Fibrosis Canada are feeling more ready than ever to make positive…

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access to medicines banner

The Advocacy Brief – Issue #1

Welcome to the first issue of Cystic Fibrosis Canada’s newsletter dedicated to advocacy. We’ll bring you the latest news on accessing modulators in Canada, updates…

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Elizabeth Dubé Walks for her godson, Émerick

Since I can remember, my family has always shared an incredibly tight bond. We spend a lot of time together, hosting family dinners and playing…

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Trikafta commitments

Advocacy‌‌ ‌‌updates‌‌ ‌‌and‌‌ ‌‌latest‌‌ ‌‌news‌‌ ‌‌-‌‌ ‌‌March 5

Trikafta’s Progress through the Canadian drug review and reimbursement system Submissions to review bodies CADTH and INESSS Cystic Fibrosis Canada has sent a submission on…

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Leroy Smith

Matthew and Melissa Smith: Going Further for Leroy

My name is Melissa Smith, I’m a registered nurse and my husband, Matthew, is a photojournalist. We have two wonderful children – our son Leroy,…

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Advocacy‌ ‌updates‌ ‌and‌ ‌latest‌ ‌news‌ ‌-‌ ‌February 12

Trikafta review timeline updates Trikafta continues through the Canadian drug review & reimbursement process, currently under review with Health Canada, CADTH and INESSS. CADTH has…

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Advocacy UIpdates

Advocacy updates and latest news – January 29

Read the latest advocacy updates from Cystic Fibrosis Canada. Trikafta Review: Making CF Voices Heard Thanks to all of you who filled out our community…

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Patient Survey to Inform Trikafta Drug Review

As the life changing cystic fibrosis medicine, Trikafta, continues to rapidly move through Canada’s drug review and reimbursement system, Cystic Fibrosis Canada is conducting a…

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