Jo-Ann et Gordon Thow habitent dans la région de Durham, dans le sud de l’Ontario, où leur garçon Simon et leurs filles, Megan et Sarah ont grandi. Simon, maintenant âgé de 40 ans, a reçu un diagnostic de FK à la naissance, après avoir présenté des symptômes courants de la maladie. Bien que bouleversant, son diagnostic n’était pas vraiment surprenant puisque la sœur de Jo-Ann était atteinte de fibrose kystique. Elle a reçu son diagnostic alors qu’elle fréquentait l’université, et est malheureusement décédée en 2014, cinq ans après une transplantation pulmonaire bilatérale.
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The Kinsmen Club of Winnipeg has raised and is donating an amazing $100,000 to Cystic Fibrosis Canada. This is one of the largest single donations to CF Canada ever, and, as far as we know, the largest single contribution from any Kin club during our 56 year partnership. We are so grateful to The Kinsmen Club of Winnipeg and all Kinsmen and Kinettes across the country for their years of support and we applaud them for always pushing further for people living with cystic fibrosis.
Many other Kin Clubs have stepped up this year to make contributions, even though they are also dealing with the effects of the pandemic on their activities and members. We are so grateful for all of the wonderful volunteers at Kin Canada, whose hard work and dedication is helping change lives. Whether it's progressing our fight to get game changing drugs into Canada, expanding our clinical trials network or ensuring our community has the care and support they need. The partnership with Kin Canada has helped Cystic Fibrosis Canada change the CF story for the better and we look forward to continuing to go further together for people living with cystic fibrosis.
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